lindsays blog

Day 7 & 8

The last few days are starting to blur together, but Miles is doing great.  The nurses keep telling me that he is doing everything he should be doing for his age.  Today is his 1 week birthday.. so happy birthday Miles!  My favorite nurse has been with Miles for the last two days, so I have spent both days with him, holding him and trying to breastfeed him.  His respirations are coming down, but are still on the high end of normal.  His bilirubin levels keep coming back within a normal range, so he no longer has the threat of being put back under the lights.  They have decreased the amount of air being pushed through the nasal canula and think that tomorrow they may get rid of it altogether.  They are however having a difficult time with his veins.  His IV’s keep blowing, so now he has an IV in his scalp, which is a little frightening but he seems to like to use his hands a lot, so the scalp IV will hopefully stay in place longer than it was in his arms.  For the last two days they are finally allowing me to try and breastfeed him, but he just seems still to weak and tired to try for very long.  We have been able to get him to latch a couple times, but tires after a few sucks.  But, we are making progress.  Then they end up feeding him through the tube going to his belly while I hold him skin to skin to keep him warm and comfy.  He usually falls sound asleep on me and my nurse has been letting me keep him there for a few hours at a time sometimes.  I truly believe that is what is making him so strong to keep fighting and get better every day.

As for myself, I am moving around a bit better but I think the anxiety and nervousness of leaving Miles in the hospital is being replaced by pure exhaustion, so on that note… goodnight!!!